Our Story501(c)(3) Pending — EIN 41-4419409

About the Fund

Beat the Odds Sarcoma Fund exists because one family learned firsthand that the distance to a specialist can be as dangerous as the diagnosis itself. We’re here to make sure geography never decides who gets to fight.

100%
Of grant funds go directly to patient travel costs
5 days
Target turnaround from application to decision
$0
Administrative overhead on travel grants — volunteer-run
Our Story

Why this fund exists — and why sarcoma specifically.

Sarcoma is one of the rarest forms of cancer, accounting for roughly 1% of all adult malignancies. Unlike breast or colon cancer — where oncologists exist in most mid-size cities — effective sarcoma treatment requires multidisciplinary teams with deep subspecialty experience. Those teams exist in only a handful of academic medical centers in the United States.

What that means in practice: a patient diagnosed in a rural area or a small city often has no local expert. Their best shot at the right diagnosis, the right surgical margin, the right chemo protocol — is hundreds of miles away. And insurance doesn’t cover the gas, the flights, or the hotel stays.

Beat the Odds Sarcoma Fund was founded by a family who lived that reality. We know what it feels like to weigh a plane ticket against a treatment decision. We started this fund so no one else has to make that calculation.

Rare Disease, Few Centers

Fewer than 50 academic centers in the U.S. have dedicated sarcoma programs with full multidisciplinary teams.

Travel Is the Barrier

For patients outside major metros, reaching the right specialist means days away from home — and thousands in uncovered costs.

Founded by Family

We experienced this firsthand. The fund was built by people who understand the weight of these decisions at the worst possible time.

Sarcoma-Specific

We focus exclusively on sarcoma patients — all subtypes — because this community is underserved and its needs are distinct.

How We Operate

Every dollar raised goes to getting a patient there.

We operate with a strict commitment: grant funds are never touched by administrative overhead. Our team is volunteer-run, and we pay vendors directly so patients never have to front costs and wait for reimbursement.

  1. 01Direct Vendor Payment

    We book and pay airlines, hotels, and rideshare providers directly. No cash disbursements, no reimbursement delays, no out-of-pocket risk for the patient.

  2. 02Volunteer-Run Operations

    No paid staff means no administrative overhead drawn from grant funds. Every dollar donated to the travel fund reaches a patient.

  3. 03Fast Review Process

    Treatment schedules don't wait. We target a 5-business-day review cycle and expedite urgent cases when travel is imminent.

  4. 04Full Transparency

    We publish how funds are allocated. Donors can see grant totals, patient count, and expenditure categories at any time.

What your donation does

When you support Beat the Odds, here’s exactly where it goes.

  • 100%
    Travel Grant Funds
    Airfare, lodging, ground transport, and fuel for approved patients
  • 0%
    Administrative Salaries
    All staff and reviewers are volunteers — no payroll drawn from grants
  • 0%
    Cash to Patients
    Funds are paid directly to vendors — no cash disbursements that could be diverted

Beat the Odds Sarcoma Fund is a 501(c)(3) nonprofit (pending). EIN 41-4419409. Donations are tax-deductible to the extent permitted by law.

Our Principles

Three commitments we never compromise on.

These aren’t marketing values. They’re the operating rules we wrote before we accepted our first donation.

Dignity

Patients shouldn't have to beg.

Our application is short, respectful, and asks only what we need to make a decision. We don't ask patients to share their story publicly, justify their illness, or prove they "deserve" help. A diagnosis and a travel distance is enough.

Speed

Fast decisions because time matters.

Cancer treatment doesn't wait for committee schedules. We review applications within 5 business days. In urgent cases where surgery or a first oncology appointment is imminent, we expedite. Bureaucracy kills momentum — we're designed to move fast.

Transparency

Direct payment, visible accounting.

We pay vendors directly so funds can't be spent on anything other than travel. We maintain clear records of every grant and publish aggregate spending data. Donors deserve to see their money at work, and patients deserve to know we're accountable.

Who We Are

Founded by a family. Built for patients.

Beat the Odds Sarcoma Fund was started by a family in Spring Valley, California who experienced sarcoma care firsthand — the diagnosis, the specialist search, and the impossible logistics of getting to the right place at the right time.

We are not a large institution. We are a small, determined group of people who know exactly what this community needs — because we were part of it. Our full founding story will be shared here soon.

Founding Team

Founded by a family who experienced sarcoma care firsthand. Full story coming soon.

Organization Facts

  • Legal nameBeat the Odds Sarcoma Fund
  • Tax status501(c)(3) Pending
  • EIN41-4419409
  • LocationSpring Valley, CA
  • Service areaNationwide (U.S. patients)
  • Staff modelAll-volunteer

Interested in volunteering or partnering?

We welcome oncology social workers, patient advocates, and mission-aligned partners. Reach out and let’s talk.

Contact Us

Take the next step

Don’t let distance be the reason you can’t fight.

If you or a loved one has sarcoma and needs to travel for specialized treatment, we may be able to help. The application is free, takes about 15 minutes, and carries no obligation.